Coping



Patient and Caregiver Diaries

Username or Email: Password: Go
Login

Patient Diary -- Joellen Brown


oldest to recent

1  2  3  4 
Tuesday, November 30, 2010
Just Me
It has been awhile since I have written in here. I guess if it is not put on paper then I can avoid it. I have been on Tracleer for a year now and oxygen 24/7. I feel like I am better than I was last year. I have lost around 25 lbs since last year and I am not working. But again it has been a journey trying to get SSD, medicaid, food stamps and then breaking my ankle. It has not been easy. Heather moved out 2 months ago with the dog and I have enjoyed the quiet. Nothing serious has changed in my health. Still have the same issues as everyone else. Headaches, puffy feeling, bloated, aches and pain, and I can go on and on. I try to take one day at a time but sometimes it gets away from me and I start feeling sorry for myself. And I think that is where I am at now. I know it is because of the holidays and sitting here and remember about when the girls were little and I was married. How we would go and get the tree, the cooking and baking, going shopping for presents and new clothes for the holidays, counting the days till "Santa" gets here. Now the girls are 23, 27 and 30 it is sad!! And I look back and I used to do those things not very long ago. Now I need help with putting the tree up, shopping and all the other stuff that goes along with the holidays.
But I think the one thing I am having the hardest with is I found out my ex is getting married. That has hit me hard...we were divorced in 2001 and was married almost 23 years. We split in Sept 2000, he got a girlfriend Jan 2001 and we were divorced in May 2001. They were together for about 8 years then broke up last year sometime. He met her online and she was from China. Did not know how to speak alot of English when they first met. Now his current Girlfriend is from Laos and they have been together I think about a year. They are getting married in Jan 2011. I know we would never get back together. I have not been with anyone or dated during the divorce. He was the only man I was ever with sexually. So I am a born-again virgin!!! We talk every once in a while and it is usually about the girls or money. I know it is something I will get thru like everything I have to deal with in my life.
I go for my 6mw on Dec 7 so hopefully it will be good news!!
Read Comments (2)   •    Make a Comment







Friday, December 17, 2010
HO ~ HO ~ HO!!!!
I went to my sisters house for a holiday cookie exchange on sunday. First I was not feeling good, my cookies were horrible and it was snowy!!!I left early and slept until pretty much the next day and then woke up with a bug or cold of something. I am feeling a little better since sunday....I have a hard time breathing out of my nose sometimes and now have a cough. Not running a fever but just very tired. I remember feeling this way last year and looked on my diary from 2009 and I was sick with almost same symptoms. I fell on my knees yesterday, just all of a sudden they gave out just like last time. I didn't hurt myself. I went to my cardio docs last week and have a 30 day heart monitor on cuz I am having heart palpations for a couple of weeks. So now I am sick with this stupid monitor on, 02 on, and just trying to keep fluids in me. It is all in my head and feeling real fuzzy.Been having hard time concentrating and typing.  Called my reg doc but she did not think nothing she could do, since no fever just taking dayquil and nightquil. Which is fine with me cuz I am not going anywhere.. But it sucks cuz I don't have all of my christmas shopping done. I have not put up the tree or any decorations. I have stuff to mail out too. I will just have to do it this weekend with some help.
I know I have said this before......next year I am doing this stuff earlier!!!
Read Comments (3)   •    Make a Comment







Sunday, January 02, 2011
1-2-11

This year better be better!! I know I have to make an effort but why?? Its just me here, why get dressed or showered. I can tell that sob is changing. I see the pulm doc on wednesday so who knows!! I just feel very down....not depressed...just feeling sorry for myself I guess. I am finally getting over this head cold crud that I had but I fell in the hall on Monday and hurt my right leg. It is feeling better but still limping now. I know I didn't break anything but it was the same area that I broke my ankle last Feb. It seems like Feb is an anniversay for several things.....when I broke my ankle, got my medicaid approved, sent in my application to the low income place. So who knows??!!  I just don't feel like doing anything. Seems like I get sob more too. I have taken my oxygen sats and they have been down too even tho I am on 02 24/7. Maybe I need to up it from 4L to 5L. Well the doc will tell me. I still have to mail out the christmas gifts to my 2 girls. I want to get them some little things to include then they will be mailed. I did not send any cards out, no decorations all this cuz I was sick.
I have been reading other phers diaries and I think my ph has been changing. I think the doc will change my meds cuz of this. From reading other phers I can tell it has changed and I do not want to go on a IV med. That scares me to death!! When I saw my cardio the first of dec he put me on a heart monitor cuz I have been having heart palpations. I had to have that on for 30 days, I took that off yesterday and have that to be mailed back. I am anxious to see what that says. Other phers say they are having memory loss. I started having that back when I was dxd with congestive heart failure, about 6 years ago. That is when all this other stuff starting to happen. I have a hard time concentrating, reading things and then retaining it. I think it is with the blood flo and lack of 02. I have told my docs but they don't seem to care or notice.
I guess right now I am scared. I am here alone and thinking........ is this my life now??!!
I don't have a new years reselution....I just want a better life!!

Read Comments (3)   •    Make a Comment







Tuesday, March 01, 2011
3-1-2011

Been awhile since i have been on here. Not sure why, i guess nothing to say. Same old stuff. Then i went and fell. Fractured my right wrist and pulled tendons in my left foot. So now i still cannot drive, which really sucks!!  I have fallen before but i did not hurt myself that bad. Heather thinks its because i am not wearing my bi-pap mask at night. I don't think it is that. My legs just give out all of a sudden. I don't pass out or faint. My doc wants me to see a neuro doc when i am all healed. OH BOY something else! I have told her about the falling before and how my body jerks sometimes. Then i thought i was having mini-strokes and the doc said no it was not that. So more tests to be done!
I don't like this. All my life i have been the "sick one". I had enough on my plate then i don't want anything else for people to say "oh poor Joellen look at her". I just want to be left alone. Without being able to drive i am pretty much stuck at home. Then i start feeling sorry for myself and thats not good. So i just sit all day. I hate to ask for help. I have always been the "mom". I don't have alot of family/friends that can take me places during the day....they all work. I am hoping in a week or two that i can start driving. Plus the weather has been horrible so i guess staying home is a good thing.
My ex got married in jan. I have been thinking about that alot. He posted pics on fb and i keep looking at them. Not as much at the beginning but still off and on. He cleaned himself up and looks pretty good. I think she is from Laos. After being married for 23 years it is sad, being divorced for 10 years with no boyfriend is even sadder!!!
My mom and i put in our apps for a 2 bedroom at the place she lives. I cannot afford to stay here. I never thought i would be moving there, i thought she would live with  me. Oh well, i gotta do what i gotta do. A girl that i went to school with lives there now so it is not a bunch of "old" people, it is a low-income place.
I had such an awful last year that i was hoping for a better 2011. Just getting passed a couple road blocks and hoping for smooth sailing!!

Read Comments (2)   •    Make a Comment







Wednesday, March 02, 2011
3-2-2011

My mom called to tell me that a classmate friend of mine died. She lived at the same building that my mom lives at. Evidently she died sometime yesterday and they found her this morning. She was my age and had COPD plus had several back surgeries. She always rode around in a scooter and was a heavy smoker plus she was on oxygen. She was sick with bronchitis and it looked like she could not get her breath. I am so sad over this. I just talked to her 3 days ago. She was so excited about me getting an apartment there.
Then I got the call from them and they have an apartment open for me. I have been waiting over a year to move there. It is a low income facility. I couple move there in a couple of weeks.I am hoping my family and friends will help me move. I just can't do the bending over and picking up heavy stuff.
Boy.....I don't even know where to start packing at. I think I will start going thru the clothes cuz those apartments do not have a lot of space. Downsizing again!!!

Read Comments (1)   •    Make a Comment







Sunday, April 03, 2011
New Digs
I will never move again!!! I have not been on here lately. It has been a whirlwind!! I have been in my new place a week now and just getting to know where everything is. It took me 3 weeks to move and have not felt good this whole week. The management team here are run by 2 ladies. One of them is not very pleasant and the other is ok....which is typical. They tell me I need to have my cat get his shots a week before we move, which I got that done. Then 3 days before I move, they need another paper from SS and  I am told then the cat needs to be fixed!!! I go in on Friday to sign the papers and I tell them I having the cat kenneled and they will do the surgery on Monday. They said that was fine. It  was going to cost me over $300 that I did not have. The vet clinic were able to work with me and I could post date a couple of checks. Then the one that I don't like calls me on Wednesday and says they need additional paperwork or I would have to leave!! I was so pissed I was shaking. Mom said that she was kidding and I told her I don't think so.I got the paperwork she asked me for and I took it to  the office and she was nice to me......I almost smacked her!! I have never liked this lady. Its not easy for me to go out and stand in line to wait for stuff.

This move has kicked my butt!!! My legs hurt and they seem to be swollen with fluid even taking the lasix. Do any of you take the lasix and still not pee very much? Thats what I feel like. I just feel like I am not peeing as much during the day even with drinking the water and the lasix pills. I have the heart beating in my ears too, do any of you? My portable tank has been giving me issues when I go out. When I put it on pulsating it likes freezes up. When I put it it on continous it will work half of time. I went to my sisters today and had to leave early cuz I was getting sob. I will call them on Monday to check on it.

Well, this is my new journey now. Hopefully, everything well settle down soon!!  
Read Comments (3)   •    Make a Comment







oldest to recent

1  2  3  4  


Take the Current Poll
View Current Poll Results To Date
View the Poll Archives