Coping
Patient and Caregiver Diaries
Patient Diary -- The Life and Times of Alex
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the date
So last night D and I met in Downtown SS and got a bite to eat. we went then to starbucks and each had a cup of coffee. I took my pills before going to starbucks and accidentaly took a sleep pill. i got so freaking tired i was yawing and yawing until i said i had to go and sleep before i passed out. he walked me home and went up the elevator with me to the apartment.
it was a nice date. we talked alot about our families and what we want to do in our lives. well he did. i don't really make plans. remember? i hope to see him again next week. or so.
^i^
laptop crashed
hey guys! I know it's been a long time since I've posted and I'm sorry for that!
The laptop that my sister and I share crashed so i don't have anywhere to use the puter. it's alot harder to usea puter at the library here than it is in texas. In tx Icould just walk in and sign up for one and sit down for an hour.
Here, you have to sign up and wait in the mail for your "key". Then when it does arrive some 2 weeks later, you have to wait in line for people to get off the puters. I'm using a friend's computer now. I tried logging in with my cell phone but the page was way to big to load. oh well.
I'll try to write more soon
love you guys!
^i^
Sleep study and other exams
Tonight I will be doing my third sleep study. Fun Fun Fun. I'm not worried about it jsut about the CPap or BiPap.
Then I get to go to an Endocrynologist for my PanHypo Pit.another fun day full of exams!
Exciting news though, Carly and Lulu will be heading over for 16 days starting on June30!!! Let me tell you how excited I am!!! I called a few airlines this morning while I was taking a break from mopping and vacumming. They were all like $300 per , one way!!!!
So this evening I went to southwest.com and found one way per..... $89!!!!! Of course I booked it right away! Now... it's up to their father to pay for the return ticket. I' ve already been looking at free things to do in the DC/ Maryland/ Virginia area! We can zip car on the places that don't have metro and of course metro on the places that do!!!if you are from there areas and can think of free fun things for teens to do, please please please, let me know!!!
email me since i have such a hard time getting posts from here. I'm using a friend's puter right now is the only reason I can write here.
thanks to Cheryl and her guy who helped me with my password!!!
with love
alex
alexflipse.geo@yahoo.com
kids coming soon!!!
Hi friends! I can't believe the kids are coming soon! And it can't be soon enough! I'm so excited to see them!!!
I have so much for us to do together while they are here!!!
We're going, of course to all the monuments and museums etc. But we are also going to be swimming everyday except mondays because the building closes the pool on monday. I'm just so excited to spend time with them and visit and share secrets!!!! I can't wait!
On another note, my first DC Support Group Meeting is on July 30. please let me know if you would like more info!!! alexflipse.geo@yahoo.com
with love
^i^
please pass on this website!!!
PLEASE PASS THIS WEBSITE OUT!! MY DAUGHTER AUNDREA ELIZABETH FLIPSE RAN AWAY ON SATURDAY FROM THE RESIDENTIAL FACILITY WHERE SHE WAS STAYING. THIS IS NOT A JOKE OR SPAM OR ANYTHING ELSE. THIS IS FROM HER MOTHER, CYNTHIA HELEN FLIPSE. WE LIVE IN MARYLAND AND SHE WAS IN BALTIMORE WHEN SHE RAN AWAY. PLEASE PLEASE PLEASE PASS THIS INFORMATION ON TO EVERYONE IN YOUR ADDRESS BOOK. THANK YOU SO MUCH. PLEASE ALSO PRAY THAT SHE IS SAFE AND WILL BE FOUND SOON! GOD BLESS YOU FOR YOUR HELP!!!!!
DREA
Drea came home and is safely back in Baltimore. She knows that if she runs away again I will lose custody of her, so she says she will never run again. Thank you so much everyone for all your thoughts and prayers!!!
i love you guys!
My girls from Texas that live with their father were here for 2 weeks. If you would like to see pics and aren't already a friend of mine on facebook, I'm Alex Castro Flipse. I also do questions of the day there. On twitter, which I rarely use, I'm flippy2 :-)
I'm going to upload a photo here but not sure if it will work or not.
with love
alex ^i^
Long Long Time!
Hi everyone!
It has been so long since I posted in my diary, i don't even know where to begin. I'm leading the Silver Spring MD Support Group meetings as well as the Washington DC Support Group Meetings. I'm no longer working in the shoe store. I'm in an office doing data entry. I really love the work i do! I also volunteer almost every day and am loving it! I'm enjoying myself, although i sill have so much that I have to work on. I won't get into that here, let's just say that I'm having fun!
I hope everyone is doing well! take care
with love
alex ^i^
ps. I forgot to mention that I'm on Face Book and on Twitter! You can find me raising awareness on FB as Alex Castro Flipse and Twitter as flippy2
RHC
I'm scheduled for Right Heart Cath on Friday at Johns Hopkins. I'm nervous about the RHC since I've only ever had ONE in my life. But I know I need it.
I'm taking a lot longer to do things. It takes more energy to even get out of bed. Walking on inclines makes my heart feel like it will thud itself out of my chest. after an appointment Dr Girgis, my PH doc, stuck his head in the door and asked if I had been on Flolan before. Well, yes, I have been on Flolan; for four years! If I have to go back on, I will. Do I want to go back on? of course not!!! But I know that Flolan was my miracle med, warts and all.
I'm worried about the RHC. Scared even. But Dr G promised to give me something to calm me down. I'm also getting extra stuff done during the RHC, another study I guess. Plus, I'm getting an experimental MRI done. another not so comforting test. I'm afraid of small enclosed spaces. of course I know the word for it but have no idea how to spell it. claustrophobic?
Onto better news!!!
Carly and Luzy and even my mom are coming for Christmas! I'm so extremely excited! we have tickets to go up the Washington Monument and I have to wait a few more days before requesting tickets to go into the White House. We missed the time to request tickets for the White House National Christmas Tree Lighting. But I know we can walk by and see it in all it's splendor. I really really hope this turns out to be a beautiful and wonderful Christmas ever! Full of wonderful memories for us all!
with love
Alex ^i^
Long Week!!!!!
This is going to be a hell of a week for me!
Monday = clean up
Tuesday = pick up PH'er from airport and prepare for Congressional Luncheon
Wednesday = Congressional Luncheon
Thursday = Meeting in Baltimore/
Friday = RHC
hell of a week and I'm already so tired!!!
Long Week!!!!!
This is going to be a hell of a week for me!
Monday = clean up
Tuesday = pick up PH'er from airport and prepare for Congressional Luncheon
Wednesday = Congressional Luncheon
Thursday = Meeting in Baltimore/
Friday = RHC
hell of a week and I'm already so tired!!!
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